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ASHAM Analyse sociologique des habitudes de vie des adultes atteints de Dystrophie myotonique de type 1 ou maladie de Steinert: Rapport de recherche dans le cadre du premier appel à projets de recherche 2012 Sciences humaines et sociales et maladies rares
- Abstract:
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Living habits for individuals suffering from a debilitating chronic disease are poorly known, yet essential for effective nursing care to be delivered in the long term. Myotonic dystrophy type 1 (DM1 or Steinert’s disease) is a particular chronic rare disease: it is genetic and progressive; it affects several functions and currently treatment for it is solely symptomatic. Amidst this complexity, it is relatively easy to cater for this clinical diversity in medical terms through multidisciplin...
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- Publication status:
- Published
- Peer review status:
- Peer reviewed
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(Version of record, 163.3MB)
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- Publication website:
- https://halshs.archives-ouvertes.fr/halshs-01470373
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Bibliographic Details
- Publisher:
- Laboratoire Droit et Changement Social - UMR CNRS 6297, Université de Nantes Publisher's website
- Place of publication:
- Nantes
- Publication date:
- 2016-09-01
Item Description
- Language:
- French
- Keywords:
- Pubs id:
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1180749
- Local pid:
- pubs:1180749
- Deposit date:
- 2021-06-07
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- Copyright date:
- 2016
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