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Journal article

Personalized assent for pediatric biobanks

Abstract:

Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children’s samples in biobanks involves specific ethical issues. One of the main concerns is how to appropriately engage children in the consent procedure. We suggest that children should be involved through a personalized assent procedure, which means that both the content and the process of assent are adjusted to the individual child. In this pape...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publisher copy:
10.1186/s12910-016-0142-0

Authors


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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Sub department:
Population Health
Role:
Author
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Grant:
Oxford Biomedical Research Centre to KM
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Grant:
096599/2/11/Z to JK
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Grant:
FP7/2007-2013 project BIOSHARE (proposal no. 261433) to JK
Publisher:
BioMed Central Publisher's website
Journal:
BMC Medical Ethics Journal website
Volume:
17
Issue:
1
Article number:
59
Publication date:
2016-10-12
Acceptance date:
2016-09-29
DOI:
ISSN:
1472-6939
Pmid:
27733160
Source identifiers:
738909
Language:
English
Keywords:
Pubs id:
pubs:738909
UUID:
uuid:6330289a-d76a-45a6-b454-128e22c3f214
Local pid:
pubs:738909
Deposit date:
2017-12-12

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