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Journal article

Personalized assent for pediatric biobanks

Abstract:

Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children’s samples in biobanks involves specific ethical issues. One of the main concerns is how to appropriately engage children in the consent procedure. We suggest that children should be involved through a personalized assent procedure, which means that both the content and the process of assent are adjusted to the individual child. In this pape...

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Publication status:
Published
Peer review status:
Peer reviewed
Version:
Publisher's version

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Files:
Publisher copy:
10.1186/s12910-016-0142-0

Authors


Giesbertz, NAA More by this author
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Institution:
University of Oxford
Division:
Medical Sciences Division
Department:
Nuffield Department of Population Health; Population Health
van Delden, JJM More by this author
Bredenoord, AL More by this author
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Grant:
Oxford Biomedical Research Centre to KM
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Grant:
096599/2/11/Z to JK
More from this funder
Grant:
FP7/2007-2013 project BIOSHARE (proposal no. 261433) to JK
Publisher:
BioMed Central Publisher's website
Journal:
BMC Medical Ethics Journal website
Volume:
17
Issue:
1
Pages:
Article: 59
Publication date:
2016-10-12
Acceptance date:
2016-09-29
DOI:
ISSN:
1472-6939
Pubs id:
pubs:738909
URN:
uri:6330289a-d76a-45a6-b454-128e22c3f214
UUID:
uuid:6330289a-d76a-45a6-b454-128e22c3f214
Local pid:
pubs:738909

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