- Abstract:
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Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children’s samples in biobanks involves specific ethical issues. One of the main concerns is how to appropriately engage children in the consent procedure. We suggest that children should be involved through a personalized assent procedure, which means that both the content and the process of assent are adjusted to the individual child. In this pape...
Expand abstract - Publication status:
- Published
- Peer review status:
- Peer reviewed
- Version:
- Publisher's version
- Files:
-
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(pdf, 397.8kb)
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- Publisher copy:
- 10.1186/s12910-016-0142-0
-
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Some thesis volumes scanned as part of the digitisation scheme funded by Dr Leonard Polonsky are currently unavailable due to sensitive material or uncleared third-party copyright content. We are attempting to contact authors whose theses are affected.
- Grant:
- ZonMw grant project no. 113203013
- Grant:
- Oxford Biomedical Research Centre to KM
- Grant:
- FP7/2007-2013 project BIOSHARE (proposal no. 261433) to JK
- Publisher:
- BioMed Central Publisher's website
- Journal:
- BMC Medical Ethics Journal website
- Volume:
- 17
- Issue:
- 1
- Pages:
- Article: 59
- Publication date:
- 2016-10-12
- Acceptance date:
- 2016-09-29
- DOI:
- ISSN:
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1472-6939
- Pubs id:
-
pubs:738909
- URN:
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uri:6330289a-d76a-45a6-b454-128e22c3f214
- UUID:
-
uuid:6330289a-d76a-45a6-b454-128e22c3f214
- Local pid:
- pubs:738909
- Language:
- English
- Keywords:
- Copyright holder:
- Giesbertz et al.
- Copyright date:
- 2016
- Notes:
- Copyright © 2016 The Authors. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
Journal article
Personalized assent for pediatric biobanks
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+ Netherlands Organization for Health Research and Development
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+ National Institute for Health Research
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+ European Union
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