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Investigating the potential for ethnic group harm in collaborative genomics research in Africa: Is ethnic stigmatisation likely?

Abstract:

A common assumption in genomics research is that the use of ethnic categories has the potential to lead to ethnic stigmatisation - particularly when the research is done on minority populations. Yet few empirical studies have sought to investigate the relation between genomics and stigma, and fewer still with a focus on Africa. In this paper, we investigate the potential for genomics research to lead to harms to ethnic groups. We carried out 49 semi-structured, open-ended interviews with stak...

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Authors


de Vries, J More by this author
de Vries, J More by this author
Williams, TN More by this author
Kwiatkowski, D More by this author
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Journal:
Social Science and Medicine
Volume:
75
Issue:
8
Pages:
1400-1407
Publication date:
2012-10-01
DOI:
EISSN:
1873-5347
ISSN:
0277-9536
URN:
uuid:60af31ce-4c22-42c5-9f44-445a9350b4bb
Source identifiers:
348812
Local pid:
pubs:348812

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