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TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research across Europe.

Abstract:

The regulatory regimes for research with residual tissue and accompanying data differ widely between countries in the European Union (EU): from specific consent to opt-out or even no consent at all. This could greatly hamper research where the exchange of tissue and accompanying data has become the gold standard, like in TubaFrost. Instead of adhering to international guidelines, which have a democratic deficit, or an attempt for a new set of possible harmonising rules, TubaFrost chose to cre...

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Publication status:
Published

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Publisher copy:
10.1016/j.ejca.2006.04.028

Authors


van Veen, EB More by this author
Riegman, PH More by this author
Dinjens, WN More by this author
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Journal:
European journal of cancer (Oxford, England : 1990)
Volume:
42
Issue:
17
Pages:
2914-2923
Publication date:
2006-11-05
DOI:
EISSN:
1879-0852
ISSN:
0959-8049
URN:
uuid:53b3a172-71ef-4f61-8fe5-1a1c7cf1f0c8
Source identifiers:
238609
Local pid:
pubs:238609

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