- Abstract:
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Sharing individual-level data from clinical and public health research is increasingly being seen as a core requirement for effective and efficient biomedical research. This article discusses the results of a systematic review and multisite qualitative study of key stakeholders' perspectives on best practices in ethical data sharing in low- and middle-income settings. Our research suggests that for data sharing to be effective and sustainable, multiple social and ethical requirements need to ...
Expand abstract - Publication status:
- Published
- Peer review status:
- Peer reviewed
- Version:
- Publisher's version
- Files:
-
-
(pdf, 335.7KB)
-
- Publisher copy:
- 10.1177/1556264615594606
-
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- Publisher:
- SAGE Publications Publisher's website
- Journal:
- Journal of Empirical Research on Human Research Ethics Journal website
- Volume:
- 10
- Issue:
- 3
- Pages:
- 302-313
- Publication date:
- 2015-08-21
- DOI:
- ISSN:
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1556-2654 and 1556-2646
- Pubs id:
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pubs:541648
- URN:
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uri:01405b95-07ca-40dc-959d-04732fc9661d
- UUID:
-
uuid:01405b95-07ca-40dc-959d-04732fc9661d
- Local pid:
- pubs:541648
- Paper number:
- 3
- Copyright holder:
- Susan Bull et al.
- Copyright date:
- 2015
- Notes:
- This article is distributed under the terms of the Creative Commons Attribution 3.0 License (http://www.creativecommons.org/licenses/by/3.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Journal article
Best practices for ethical sharing of individual-level health research data from low- and middle-income settings
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Wellcome Trust
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